Family stories
The faces behind every breakthrough.
Behind every data point is a child, a family, a life rewritten by HIKESHI-leukodystrophy. These are their stories.
Stories from our community.
First-person accounts from families touched by HIKESHI-leukodystrophy.
Share your story.
Your words give hope to other families and visibility to our mission. Submissions are reviewed before publication; you can include a photo of your child if you wish.