Donate

Help Us Fund the Cure

We are preparing to accept donations as soon as our nonprofit infrastructure is in place.

We are a nonprofit and already accepting donations

HIKESHI Foundation is an established nonprofit organization, and we are already accepting donations to fund gene therapy research and family support. Our 501(c)(3) tax-exempt status is in progress; once granted, contributions may be retroactively recognized for tax purposes. Thank you for your support — and for caring.

Be the first to know when we receive 501(c)(3) status

Leave us your email and we'll notify you the moment our 501(c)(3) tax-exempt status is granted, so your future contributions can be fully tax-deductible. We'll also send updates on our progress, research news, and how your support directly funds gene therapy research and family support services.

Ways to Give

While we finalize our online donation infrastructure, we are ready to receive contributions through the following channels. To arrange a gift via any of these methods, please email amanilov@hikeshifoundation.org and we'll share the details and confirm receipt.

Credit & Debit Card

By request

Secure online card payments — available as soon as our payment processing is live.

Request details

ACH Transfer (US)

By request

Direct bank transfer from any US bank account. No fees for the donor or the foundation.

Request details

International Wire

By request

Wire transfers from outside the US. Ideal for major international gifts.

Request details

Check by Mail

By request

Personal or business check mailed to our foundation address. No processing fees.

Request details

Cryptocurrency

By request

Direct crypto donations. We accept Bitcoin (BTC), Ethereum (ETH), and stablecoins (USDC, USDT).

Request details

Before you give

For all donation methods, please email us at amanilov@hikeshifoundation.org to coordinate. We will: confirm receipt of your gift, send a personal thank-you, and provide a tax acknowledgment letter once our 501(c)(3) status is granted (donations made before that date may be retroactively recognized for tax purposes — please consult your tax advisor).

Considering a major gift?

For gifts of $10,000 or more, gifts of securities or stock, donor-advised fund grants, planned giving, or corporate matching — please contact Artem Manilov and Kristina Manilov directly at amanilov@hikeshifoundation.org. We're grateful for the opportunity to discuss how your gift can have the greatest impact.

In the meantime, here's how you can help

Share our story

Spread awareness on social media. Most Ashkenazi families have never heard of HIKESHI leukodystrophy.

If you're an affected family

Connect with us through our Join Us page.

Join Us

Reach out

For partnerships, major gifts, or other ways to contribute, please contact us directly.

Contact us

When donations open, your contribution will directly support gene therapy research and family support services that benefit every child living with HIKESHI-related leukodystrophy — today and in the future.